Tonight I will open the last bottle of medicine that has “cured” my narcolepsy and given me a life, a life past 12:30pm, that is. It will last me 10 short days. Then I’ll be able to take some pills during the day, but they don’t eliminate napping, just limit them.

I kind of wish this new medicine hadn’t worked so well for me, then I wouldn’t know what I was missing.

I have a few phone calls in to a few agencies that help pay for high price prescriptions. What regular person could pay such high prices? It’s just crazy!

“In the event that a patient is unable to afford his or her XYX, the patient may be eligible to apply for assistance through the Patient Assistance Program through the National Organization of Rare Disorders, Inc.”